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‘Kure For Kalen’ Benefit Saturday At The Martini Room

Photo by Sierra Kulas

Friends and family are getting together to help Kalen Kulas, who is struggling with Spinal Muscular Atrophy or SMA.  It’s a disorder that leads to loss of muscle function.  Kalen is 2 years old and his parents started to notice that something was wrong when he began to lose his ability to walk or stand.  The disease is a fatal disease with no known cure at this time.  Kalen’s mother, Sierra, believes however that research is close to finding a cure.

A benefit for the Kulas family is Saturday at the Martini Room in Kirkwood from 3 til 7. The money will help pay for a toddler wheelchair and ramp for their home which isn’t covered by insurance.  You can find out more about the event and SMA by facebook at Kure for Kalen. I can’t imagine having something like that happen to my child.  The helpless feeling of not being able to help, but we hope that you can help Kalen this Saturday.

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